Toward ethical research practice with deaf participants.

نویسندگان

  • Jenny L Singleton
  • Gabrielle Jones
  • Shilpa Hanumantha
چکیده

In recent years, scholars have been critical of what they consider unethical conduct by researchers whose studies focus on members of the Deaf or signing communities. This is the first empirical study that investigates ethical concerns and recommendations from the perspective of three stakeholder groups (Deaf research participants, researchers, and Deaf studies experts). We analyzed focus group discussions using strategies from grounded theory and community-based participatory research. The themes we identified highlight the need for the broader scientific research community to include linguistically and culturally sensitive research procedures that more adequately protect the rights of Deaf research participants, as well as other marginalized groups. We address the need to increase the number of Deaf scientists and reconsider collaboration practices between Deaf and hearing researchers.

برای دانلود رایگان متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

منابع مشابه

Sexual and reproductive health needs assessment with deaf people in Ghana: Methodological challenges and ethical concerns

BACKGROUND Deafness is a complex and multifaceted phenomenon. The different ways of perceiving and understanding deafness have practical implications for research with deaf people. Whilst the deaf community is not homogenous, it is generally distinct from the hearing population. Consequently, the appropriateness of applying research methods and informed concern processes designed for the hearin...

متن کامل

Ethics and Mono-disciplinarity:

There are a number of pressures on researchers in academia and industry to behave unethically or compromise their ethical standards, for instance in order to obtain funding or publish frequently. In this paper a case study of Deaf telephony is used to discuss the pressures to unethical behaviour in terms of withholding information or misleading participants that can result from mono-disciplinar...

متن کامل

Assessment of pharmacists experiences and attitudes toward professionalism and its challenges in pharmacy practice

Background: Nowadays pharmacists should be involved in patients care and providing pharmaceutical care more than before, but still there is a gap between standard of care and pharmacy practice in pharmacies. Objective: In this study we aimed at evaluating the pharmacists experiences and attitudes about ethical professional practice in pharmacies. Setting: The study was conducted in the Tehran ...

متن کامل

Ethical Considerations for the Return of Incidental Findings in Ophthalmic Genomic Research.

Whole genome and whole exome sequencing technologies are being increasingly used in research. However, they have the potential to identify incidental findings (IF), findings not related to the indication of the test, raising questions regarding researchers' responsibilities toward the return of this information to participants. In this study we discuss the ethical considerations related to the ...

متن کامل

Assessment of pharmacists experiences and attitudes toward professionalism and its challenges in pharmacy practice

Background: Nowadays pharmacists should be involved in patients care and providing pharmaceutical care more than before, but still there is a gap between standard of care and pharmacy practice in pharmacies. Objective: In this study we aimed at evaluating the pharmacists experiences and attitudes about ethical professional practice in pharmacies. Setting: The study was conducted in the Tehran ...

متن کامل

ذخیره در منابع من


  با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید

عنوان ژورنال:
  • Journal of empirical research on human research ethics : JERHRE

دوره 9 3  شماره 

صفحات  -

تاریخ انتشار 2014